I have corresponded with a number of you and, having been diagnosed with PS at birth, I’m always surprised by the number of folks who spend years and decades without a name for their condition.

So, do you think we can have some reader participation today?

I’m curious: Hold old were you when you were diagnosed?

Would you come out of the shadows, and move from a lurker to a commenter.   Tell all of us below, how old were you when you knew Poland Syndrome was the official name for your condition?  Or if a parent, how old was your child when you had the diagnosis?

I’ll go first:  I was diagnosed at birth.

See, that wasn’t so hard. 🙂

Your turn…