I can’t help but wonder how much of my self-consciousness would be decreased if my hand was different — if it was simply a smaller hand, not a deformed one. I know that many with PS have five full digits that are a smaller version of their “good hand.” I suspect that is a rather different experience than missing digits and having a hand that doesn’t look anything like a hand. These past three days my kids and I were…
I can’t help but wonder how much of my self-consciousness would be decreased if my hand was different — if it was simply a smaller hand, not a deformed one. I know that many with PS have five full digits that are a smaller version of their “good hand.” I suspect that is a rather different experience than missing digits and having a hand that doesn’t look anything like a hand. These past three days my kids and I were…
The paperback copy of Overcomer: Rising Above the Challenges of Poland Syndrome is nearly complete. It will be available on Amazon.com in shortly. Stay turned…
The paperback copy of Overcomer: Rising Above the Challenges of Poland Syndrome is nearly complete. It will be available on Amazon.com in shortly. Stay turned…
After a little getting lost time, I finally found the office. It was an obscure building in tucked away at the end of a rocky driveway. I walked inside to meet with the alumnus who would conduct the required interview for my application to Penn. Never much enjoying the process of meeting new people, and easily intimidated, I am tremendously nervous for this interview that could potential make-or-break my application. I sit down in the chair across from Dr. Schmidt. I…
After a little getting lost time, I finally found the office. It was an obscure building in tucked away at the end of a rocky driveway. I walked inside to meet with the alumnus who would conduct the required interview for my application to Penn. Never much enjoying the process of meeting new people, and easily intimidated, I am tremendously nervous for this interview that could potential make-or-break my application. I sit down in the chair across from Dr. Schmidt. I…
“I have your bathing suit” she said to me with a gleeful smile, awaiting my response. “What? Your kidding, right?” “Nope, I’ve got one for you.” “Mommy, you have a bathing suit?” comes an excited little voice through the car window as she looks on to the conversation between me and Ms. J, a friend we stopped by to say hello to on our way home. “Ha, no, I don’t have a bathing suit. I don’t swim,” I say in…
“I have your bathing suit” she said to me with a gleeful smile, awaiting my response. “What? Your kidding, right?” “Nope, I’ve got one for you.” “Mommy, you have a bathing suit?” comes an excited little voice through the car window as she looks on to the conversation between me and Ms. J, a friend we stopped by to say hello to on our way home. “Ha, no, I don’t have a bathing suit. I don’t swim,” I say in…
Growing up I often felt alone and isolated. My struggles were so different, so unique. I didn’t know anyone else with a hand like mine, so surely no one else could possibly understand. In hindsight, I think I would have felt equally alone even if I had 5 classmates with PS. I would have still thought, “They don’t understand. My struggles are different and unique.” The reality is that struggle is universal. We ALL deal with it in different ways….
Growing up I often felt alone and isolated. My struggles were so different, so unique. I didn’t know anyone else with a hand like mine, so surely no one else could possibly understand. In hindsight, I think I would have felt equally alone even if I had 5 classmates with PS. I would have still thought, “They don’t understand. My struggles are different and unique.” The reality is that struggle is universal. We ALL deal with it in different ways….