Poland Syndrome

These six words preceded a question I never mind hearing: “what happened to your hand?” Asked without a pause between the first question and the second, I answered without a moments hesitation, following the answer with, “I don’t mind at all.” I talk about this type of scenario the book, Surviving to Thriving: Finding Hope and Meaning Amidst Affliction. Anyone who is noticeably different; physical deformity, in a wheel chair, walking with a severe limp, etc. gets noticed.  Often that person gets…

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These six words preceded a question I never mind hearing: “what happened to your hand?” Asked without a pause between the first question and the second, I answered without a moments hesitation, following the answer with, “I don’t mind at all.” I talk about this type of scenario the book, Surviving to Thriving: Finding Hope and Meaning Amidst Affliction. Anyone who is noticeably different; physical deformity, in a wheel chair, walking with a severe limp, etc. gets noticed.  Often that person gets…

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Are you familiar with the idea of “would you rather?” Would you rather eat snake or monkey brains? Okay, that one was gross. Would you rather be a zebra or a giraffe? You get the idea. Growing up with Polands I often wondered (not that I had any control over it) would I rather have my right hand affected or my left hand? Reality is that my right hand is affected.  And with that comes much hesitancy when meeting new…

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Are you familiar with the idea of “would you rather?” Would you rather eat snake or monkey brains? Okay, that one was gross. Would you rather be a zebra or a giraffe? You get the idea. Growing up with Polands I often wondered (not that I had any control over it) would I rather have my right hand affected or my left hand? Reality is that my right hand is affected.  And with that comes much hesitancy when meeting new…

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We all like lists, or at least I do.  Here is a lighthearted look at a few of the characteristic of Poland Syndrome and its effects. So here are the Top 3 Ways You Know You Have Poland Syndrome: 1. When you go to the doctor you are giving him an education, instead of the other way around. 2. When you meet someone new you dread the handshake. 3. You wish they made more velcro shoes for adults.   What…

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We all like lists, or at least I do.  Here is a lighthearted look at a few of the characteristic of Poland Syndrome and its effects. So here are the Top 3 Ways You Know You Have Poland Syndrome: 1. When you go to the doctor you are giving him an education, instead of the other way around. 2. When you meet someone new you dread the handshake. 3. You wish they made more velcro shoes for adults.   What…

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